Providing Information & Connection for People with Fibromyalgia, Chronic Fatigue Syndrome, and Related Diagnoses Advocacy is a way that you, the patient (and family & friends) can make an impact on the amount of funding and research is dedicated to CFS/ME/FM.  The items listed below are not NNFCN campaigns, but are provided for your information. Time for Action Advocacy Campaign - Posted October 4, 2010 For ME/CFS Patients, Their Families & Friends Watch the inspirational “Advocacy Made Easy” video Organizers:  Robert Miller, Rivka Solomon, Charlotte von Salis Contact:  bobmiller42@msn.com One the heels of September 7, 2010, historic NIH meeting with ME/CFS patients and their families, now is the time to let the federal health agencies know we are ready for big changes.  The more they hear from us now, the more they’ll listen to us next time we meet.  The “Time for Action” campaign is advocacy made easy -- yet it will have a huge impact.  The organizers of this campaign ask patients, their families and friends to e-mail, call and/or fax NIH Director Collins and NIAID Director Fauci with this simple question everyday, starting today.  (Please CC e-mails to Robert Miller at:  hebs1reel@yahoo.com) Dear Directors Collins and Fauci, What have you done for ME/CFS* today?  Patients and their families are waiting. *Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Name:  John Doe (or John) Location:  Miami, FL Time:  Sick 12 years Contact info: 1.       National Institutes of Health 2. National Institutes of Allergy and Infectious Disease Director Francis Collins Director Anthony Fauci E-mail:  collinsf@od.nih.gov E-mail:  afauci@niaid.nih.gov (cc to:  hebs1reel@yahoo.com) (cc to:  hebs1reel@yahoo.com) Phone:  301-496-2433 Phone:  301-496-2263 Fax:  301-402-2700 Fax:  301-402-3573  (c) 2012 NNFCN - Created & maintained by the NNFCN